CFS

You are here: Home / Archives for Articles By Cause / CFS

Fibromyalgia and the co-morbid Endometriosis

by 3 Comments
Feb
21
2012
endoo

It's true that when you get a serious illness, co-morbid illnesses always follow. Now I also have to fight like a girl for Endometriosis.  I didn't see it coming, as I had seen so many doctors for my pelvic pain and had been dismissed (probably for being a girl who presents with a large number of illnesses...).  Finally, I went to a surgeon, who is the only doctor who deals with sexual problems on the side of his main practice in the area.  I went in expecting sexual therapy advice, and instead, he listened to me and immediately scheduled me for surgery. I rarely listen to my answering machine messages, so I found out on a Wednesday that my surgery was going to be Friday morning.  It was probably better like that, as I would have had too much time to think about the situation otherwise.  I came out of surgery in extreme pain and once the doctor came around he told me that there was indeed a reasonably serious case of endometriosis causing my pelvic pain.  I normally … [Read more...]

Filed Under: CFS, Endometriosis, Fibromyalgia

The Increase of Fibromyalgia/CFS in Young People

by 8 Comments
Oct
31
2011
healKick-big-300x98

Is it just me, or are more and more young people getting diagnosed with Fibromyalgia and ME/CFS?? Both have been stereotyped for so long as being illnesses that only afflict older people, but as someone who is active on twitter, I'm finding so many teens that are already diagnosed with these problems! I can relate to this a lot, as I became very sick at the age of 13. I have no idea why this illness is spreading the way it is, but we need so much more research!  If only we could manage to get out of bed long enough to spread the word!  That's why websites like this are so very important.  The Fight Like A Girl Club lets us get these thoughts out there and hopefully more people will read and learn about these illnesses and want to get involved! There is a Facebook page for young people who are suffering with these illnesses right here:  Young People with Fibromyalgia. Also, Healkick, is a new website for people under 40 with neuro-immune illnesses.  I recommend that if … [Read more...]

Filed Under: CFS, Fibromyalgia Tagged With: , , , , , , , , , ,

Accepting the Word “Disability”

by 18 Comments
Jul
22
2011
fibro

I've known that something was wrong with my body since I was able to think. I fought against this theory for a LONG time, especially when I was younger, and had more fight left in me.  Sadly, after I finished my education, it was time to face the fact that I was, in fact, unable to work to support myself.  I will forever be grateful that I have the most amazing and supportive family, as well as a wonderful partner.  They kept me alive when I didn't think that I was going to make it. Thankfully, with a change in doctors, and subsequently medication, my Fibromyalgia is behaving better.  I recently got a diagnosis of high-functioning Asperger's, which has helped me realize just why I've had such bad luck with work. Yesterday, I became a member of the PEI Council of People with Disabilities.  I'm a health activist with a lot of skills, and I want to be able to use them.  By having a case worker, it's possible that I can find employment where the employer knows exactly what … [Read more...]

Filed Under: CFS, Fibromyalgia

Keep The Light In Your Life, Despite Fibromyalgia and ME/CFS

by 19 Comments
Jun
29
2011
hydrangeas

When you first get hit with Fibromyalgia and/or ME/CFS, it seems like your entire life is being brutally robbed.  Sometimes a vast amount of it is stolen. I mean, I've managed to lose the ability to work, the ability to smell, the ability to drive, and the ability to stay awake for more than 5 hours in a row! But for all we lose, we also gain the ability to find other reasons to enjoy existence.  I've started to enjoy fashion and interior decorating, as well as blogging and coloring.  I'd love to be able to garden, but I haven't quite figured out a body-friendly way to accomplish it. I have been aiming to live a more environmentally friendly lifestyle, which gives me a sense of peace and joy, as I love the country.  I love to watch films, read or listen to books, and flip through magazines (when my hands or brain aren't giving me too much trouble!). The most important thing that I have done since becoming ill is putting my experiences on the front line for everyone to … [Read more...]

Filed Under: CFS, Fibromyalgia, Living Life, Loving Life

Fibromyalgia and Narcotics

by 9 Comments
Jun
08
2011
20080713si_fibromyalgia_330

What can I say about narcotics?  Doctors hold them close and virtually never let them go due to rampant usage as recreational drugs. They will try ANYTHING first - and as well they should, as it isn't healthy to be on a narcotic diet for life. Back when I was 13 and developed Fibromyalgia, all I had was plain old Tylenol.  I most certainly swallowed those to the 8 a day limit regularly.  I eventually got bumped up to NSAIDs, but they just made my stomach a giant mess without easing any pain. I then moved to antidepressants, which eased the pain somewhat, but eventually my drug tolerance wore them down.  I tried all kinds of epilepsy medication and antipsychotics, which the psychiatrists thought would ease this mental pain of mine (even though it was mostly physical...).  I truly believe that some of those medications actually made me dramatically more ill. Lyrica and Gabapentin were next on the list - I wasn't a big fan of Lyrica as it gave me constant headaches, but … [Read more...]

Filed Under: CFS, Fibromyalgia Tagged With: , , , , , , , , ,

My Review of The Ultimate Guide to Sex and Disability

by 4 Comments
Apr
23
2011
sex

I purchased this book a few weeks ago, as I have been having some serious problems with intimacy due to my pain-riddled body. As it is such a taboo topic, I thought maybe a book would explain the situation more clearly, and perhaps give me some suggestions on how to feel remotely attractive (as chronic illness does not equal sexy feelings!). The book is excellent for breaking down myths about sexuality and those who have disabilities and chronic illness. It teaches you that just because you don’t have the same interpretations and sensations as before, doesn’t mean that there aren’t still places on your body that will respond favorably to touch. As someone who used to work at an “adult” store, I didn’t need much help in learning about the wide variety of toys that can be used. However, for those without that background knowledge, I think it could be a very helpful set of suggestions! My favorite part of the book were the exercises at the end of each chapter. … [Read more...]

Filed Under: Book Reviews, CFS, Fibromyalgia

The Medication Situation

by 10 Comments
Mar
29
2011
Medication and Chronic Pain

Many of us take medication to treat Fibromyalgia and ME/CFS, whether it be Lyrica, Cymbalta, Gabapentin, etc...in addition to our routines of light exercise and good diet. Some of us cannot tolerate these medications, due to MCS (multiple chemical sensitivities).  Fibromyalgia almost instantly equals getting all of the strange and uncommon side effects of every pharmaceutical we try.  The instinct is just to run away from drugs, but sometimes the desperation for treatment is just too much. In my case, as someone who felt bad enough to continue down the medication rabbit hole, I have tried almost every med ever used for such problems.  My combination has been worked out of those that I have tolerated, and it's a varied set for sure. Supplements are often added into the mix, or used on their own, in order to provide relief for Fibromyalgia symptoms. The pile just seems to multiply on top of itself. I metabolize the medications extremely rapidly, and end up having to … [Read more...]

Filed Under: CFS, Fibromyalgia Tagged With: , , , , , ,

The Strength of the Human Spirit

by 7 Comments
Feb
25
2011
revolution

It never fails to surprise me just how far people will go to fight for their life and their rights. This is particularly at the front of my mind due to the revolutions in Egypt and Libya, as well as the fact that I am reading A Long Way Gone: Memoirs of a Boy Soldier by Ishmael Beah. So many bad things rock our world - war, poverty, illness - and yet so many of us will lay it all on the line in order to pick ourselves up and keep on going. My Fibromyalgia and ME/CFS are getting to the point where it is almost unbearable every single day to simply live.  All of my symptoms seem to be taking a turn for the worse.  But I'm not the only one experiencing a severe downward spiral right now...and those who are have been handling their situation with incredible bravery and willfulness. I just hope that I can handle my struggle with such strength.  I want people to hear our stories of survival against the odds.  We are all staging a revolution against our own body's dysfunction, … [Read more...]

Filed Under: CFS, Fibromyalgia

What To Do When Pain Takes Over…

by 9 Comments
Feb
05
2011
camus

Desperate times call for desperate measures. Sometimes, Fibromyalgia and Chronic Fatigue Sydrome have me beaten so far down that I cannot even imagine continuing the fight. Yet I know giving up is not an option, so I have to keep coming up with more and more tools in order to cope in these moments of vicious agony/bleak and dreary moods. My illnesses keep getting worse and worse, so I am always expanding this section of my life.  My pain doctor deserted me the other day, so now I will have to cope with the fact that I currently do not have a medication prescribing physician.  I know that EVERY girl/guy on here has had moments in their illness when it is completely overwhelming. So I'm polling the group - what do you do when things get too bad??  Here's what I do: Let myself cry until there are tissues everywhere and I have a swollen face. If possible, order takeout.  Cooking on my poor painful knees is not a treat. SOME kind of pain-easer. Music. Being by myself, … [Read more...]

Filed Under: CFS, Fibromyalgia Tagged With: , , , ,

Fibromyalgia and Men

by 9 Comments
Jan
12
2011
fibromyalgia

Fibromyalgia breaks apart lives.  This we know. The lives of men with Fibromyalgia are affected in a different, but equally severe manner when compared to women with the syndrome.  As an illness that affects less than 10% of men in United States, Fibromyalgia leaves many males feeling especially inadequate about the state of their body and their role in the world.  Women can at least find a support group of other female sufferers (such as the "spoonies" on Twitter [which includes men but they are scarce!]), while men (including several in my family), get pushed to the side, as they feel like they don't belong, and never find reasonable treatment for their illness. More women than men have Fibromyalgia, as having estrogen reduces the pain threshold (according to WebMD).  But men need to realize that this illness will benefit from their support.  There is still a slanted bias that this illness is based on mental health, which is partially true as it is neurochemical, but not … [Read more...]

Filed Under: CFS, Fibromyalgia